Global Genes and the Child Neurology Foundation released a white paper report in September 2020 outlining a set of guiding principles for rare disease care and access that are universally relevant to all patients with rare diseases. Join the report’s lead author Eric Faulkner, Vice President, Real-World Value and Strategy, and Executive Director, Center of Excellence – Precision and Transformative Medicine, for a three-part webinar series that highlights the report’s five core guiding principles to use as a set of fundamental expectations for rare disease patient care and access.
Evidera recognizes that precision and transformative medicine is different. Discover our considerable expertise in this area to provide solutions tailored to the specific needs of these technologies.