Global Genes and the Child Neurology Foundation released a white paper report in September 2020 outlining a set of guiding principles for rare disease care and access that are universally relevant to all patients with rare diseases. Join the report’s lead author Eric Faulkner, Vice President, Real-World Value and Strategy, and Executive Director, Center of Excellence – Precision and Transformative Medicine, for a three-part webinar series that highlights the report’s five core guiding principles to use as a set of fundamental expectations for rare disease patient care and access.

Download the Full Report