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Leukemia Patient Preference Study

Accepted into PFMD Patient Engagement Book of Good Practices

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Evidera collaborated with Takeda and The Leukemia & Lymphoma Society on a study looking at patient preferences for attributes of Philadelphia chromosome positive acute lymphoblastic leukemia (Ph+ALL) treatments, which was presented at the 32nd EORTC-NCI-AACR Symposium on Molecular Targets and Cancer Therapeutics and selected as a case study of good practice in engaging patients in preference research in the Patient Focused Medicines Development (PFMD) Book of Good Practices (Case 8) 2020.

The aim of this study was to understand what matters to US patients with Ph+ALL when choosing first-line treatment. The four key goals were to:

Identify the attributes of treatment that matter to patients

Quantify patients' preferences for these attributes

Use the preference data to generate insights into patients' choices

Understand why patients have these preferences

A patient-centered benefit-risk assessment was also conducted using the preferences elicited in the Discrete Choice Experiment from the patient preference study. These separate findings were presented at the ASH 2020 meeting in a poster entitled, “Treatment of Newly Diagnosed Philadelphia Chromosome Positive Acute Lymphoblastic Leukemia Using Tyrosine Kinase Inhibitors in Combination with Chemotherapy: A Patient-Centered Benefit-Risk Assessment”.

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Access the PFMD Book of Good Practices 2020

View the 32nd EORTC-NCI-AACR Poster Presentation

View the ASH 2020 Poster Abstract

Our experts understand the challenges associated with designing an effective patient engagement strategy and can provide valuable insights on how to develop creative and bespoke approaches to working with patients.

To learn more, contact [email protected] or [email protected].

Related Resources

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Fact Sheet

Patient Engagement

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White Paper

Patient Preference Studies in HTA Decision Making: A NICE to Have?

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Webinar

What Do Patients Consider Meaningful Change and How Can Researchers Define It?

  • Jul 9, 2020 10:00 AM - 11:00 AM
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